Amer Haider, Parent Co-founder of GrowingStronger.org, a nonprofit focused on dwarfism, and CEO of Doctella.com, a digital health company focused on helping patients with Smartlists, will speak at the Rare Disease Day Symposium hosted by the University of California San Francisco Catalyst Program on Friday, March 3, 2017. Amer’s talk will discuss how patients, families, nonprofits and digital health companies can help researchers and providers to improve the quality of medical care available to individuals with rare diseases.
Website for Event Information: http://www.rarediseaseday.org/event/united-states/1640
For Additional Information:
Contact: Mary Lodenkemper
Growing Stronger’s mission is to improve the quality of medical care for people through supporting research and education. We raise nonprofit donations that are granted to researchers focused on dwarfism. Small seed research grants are awarded via the Grant for Study of Skeletal Dysplasia (GSSD). Education is supported through the popular LP Doc Talk program. For more information visit www.growingstronger.org.
Doctella helps providers and payers improve health care outcomes while reducing cost. The company has developed a web and mobile-based platform that engages patients and families in their own healthcare through digital checklists that are called “Smartlists”. Doctella was founded by leading researchers from Johns Hopkins, and the platform was developed based on the seminal research of one of the co-founders, Peter Pronovost, who is a leading expert in the field of patient safety and quality of healthcare. The science supporting Smartlists was recently published in a NEJM Catalyst article. The company’s technology platform powers the recently launched Krames Health Engagement Platform which is being introduced at several major health centers across the country. For more information about Doctella, please visit www.doctella.com.